分散的医疗记录导致治疗延误了数月。
几年前，我的整个家庭都因为数据泄露而失去了健康记录。从那时起，我就对分散的健康数据问题产生了浓厚的兴趣。此外，我的叔叔曾前往土耳其接受酗酒治疗。由于他的医疗记录分散在不同的医院和系统中，启动治疗花费了几个月的时间。医生无法访问他的完整病史，这在他最需要的时候延误了治疗。
我对此感到非常愤怒，深入研究后发现，这个问题相当普遍。他们出售我们的数据，数据被黑客攻击，想要访问和实际使用这些数据几乎没有我们的同意。此外，研究人员也受到影响。这一切都是因为这些机构和大型制药公司。我知道目前的政府已经宣布将我们的所有健康记录集中在一个地方，但这让我很难信任。
因此，我决定创建一个系统，让我们所有人的记录都存储在一个加密的保险库中。当有人（医生、研究人员和运动实验室）请求访问时，我们可以授权访问，并因此获得奖励。更重要的是，我们还可以控制和拥有这些记录。
请告诉我如何改进这个想法，如果您有任何问题，或者您是否对此产生共鸣。
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My whole family got our health records stolen through a data breach a few years back. Since then, I've been obsessed with the problem of fragmented health data.
Plus, my uncle traveled to Turkey for alcoholism treatment. It took MONTHS to get started because his medical records were scattered across different hospitals and systems. Doctors couldn't access his full history, which delayed care when he needed it most.
I got really pissed off and when I went down the rabbit whole of research, turns out this problem was freaking common. They sell our data, it get hacked, it's hard to access and practically use it in any way without consent from us and on top of that researchers get affected too. All because of these institutions and big pharma. And i know the current adminitration announced having all of our health records in one place but that hard to trust.
SO I decided to create a way we can all have our records in one encrypted vault and when someone(doctors, researchers and sport labs) request access, you can license access and get incentivized by doing so.On top of that you also control and own it.<p>Please tell how I can improve this, if you have any questions and wether or not it resonates.